Kristen Resendez's son Jack, or "Captain Jack," as everyone knows him, was diagnosed with Spinal Muscular Atrophy Type 1 (SMA) on October 14, 2015, less than two months after he was born.
At his birth on August 21, 2015, Jack was a perfectly healthy baby boy weighing 8 pounds, 3 ounces. Then, around three weeks old, Jack suddenly lost movement in his arms and legs. That's when they got the heartbreaking news.
Spinal Muscular Atrophy is a hereditary disease that cause weakness and wasting of the voluntary muscles in the arms and legs of infants and children, according to the National Institute of Neurological Disorders and Stroke. The disorders are caused by an abnormal or missing gene.
There is currently no cure for SMA. Treatment consists of managing the symptoms and preventing complications. According to the NINDS, most babies with SMA Type I die within the first two years of life.
But Jack's family isn't giving up on their little Captain.
He's now a patient at Children's Medical Center in Dallas where he is undergoing experimental treatments. Jack's mom says he's being seen by "the best" doctors in the pediatric departments of Neurology, Pulmonology, Gastroenterology, Cardiology, Speech Therapy, Physical Therapy, and Occupational Therapy.
However, Jack and his mother live 500 miles south of Dallas and have to travel back and forth for his treatments.
The travel expenses, along with medical expenses and the cost of equipment, are putting a harsh financial burden on a family doing everything to save their little hero.